Links
Here you can find links to useful and relevant websites. If there is a link that you would like to recommend for this list, please contact us.
Relevant web links
- The International Consortium for Health Outcomes Measurement (ICHOM)
- The International Society for Quality of Life Research (ISOQOL)
- Standards for Research in Child Health (StaR Child Health)
- Outcome Reporting Bias in Trials (ORBIT)
- The Cochrane Collaboration
- Medical Research Council (MRC)
- National Institute for Health Research (NIHR)
- MRC Network of Hubs for Trials Methodology Research
- Cochrane Collaboration’s Methods Group for PROM
- Cochrane Journal Club
- Enhancing the QUAlity and Transparency Of health Research (EQUATOR)
- Consolidated Standards of Reporting Trials (CONSORT)
- 2010 International Clinical Trials Day podcast
- CARE - Program for Integrative Health & Healing
- The IDEAL Collaboration
- International Spinal Cord Society (ISCoS)
- The International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
- NIH Common Data Element
- Systematic Review Data Repository
- National Institute for Health Research Bristol Biomedical Research Centre (NIHR Bristol BRC)
Patient involvement
How to measure
- Patient Reported Outcomes Measurement Information System (PROMIS)
- Patient Reported Outcome and Quality of Life Instruments Database (PROQOLID)
- Consensus based standards for the selection of health measurement instruments (COSMIN)
- TREAT NMD
- Database of Instruments for Resource Use Measurement (DIRUM)
- Health Economics Research Centre (HERC) database
- ScHARR Health Utilities Database (ScHARRHUD)
- International Cognitive Ability Resource (ICAR)
- Dementia Outcome Measurement Suite (DOMS)